Monday, January 19, 2015

Hour of Code, and Other Weekend Activities

Kai finished up the school week with no further major incidents at school.

We had a busy weekend, having company on Friday evening and visiting Kai’s aunt and uncle on Saturday evening. We also had all of our usual weekend activities including the weekly trip to the library, his boxing class, fitness group, and movie night.

We also went sledding, though there was only a small sliver of snow left as most of it was melted. Still, it was enough to make several runs down the hill, though we had to wait our turn each time with such limited space to accommodate all of us with sleds.

I also had him do some step aerobics, using a step and tape that Mom recently got to work herself back into shape.


Yesterday, after doing his online math work, I showed him the Hour of Code website. Hour of Code teaches kids how to code through simple and very visual approaches. I got Kai hooked by showing him a tutorial that utilized the Angry Birds game. He eagerly went through all 20 steps, getting the bird to defeat the pig at each step, and in the process learned a lot of basics of computer programming. The steps were very easy for beginners as they can drag and drop blocks of code and do not require any typing of the code itself.


He went on to do another tutorial that put him through the steps to create a Flappy game.

Later, after his fitness group, he wanted to get back on the computer to build an iPhone app that resembled a Pokemon game. This one was a bit more challenging than the other tutorials as it required him to read instructions and then type in the proper code. But with my help, he was able to do it and remained eager to do more as his day ended.

Today he is off of school for the Martin Luther King holiday. It is also the day that he can finally get back on the iPad after his longest punishment of not using it for a week.

Before yesterday’s fitness group, he told me that he was going to ask the mom of one of his schoolmates what the iPad rules were at their house. He seemed to think that they weren’t so strict about iPad usage. I told him that if that boy destroyed his clothing, he would probably lose use of the iPad as well, but regardless, they can make whatever rules for their house and Mom and I would make the rules for our house. He still went ahead and asked the mom and later told me about the rules at their house - no use of the iPad until homework is completed.

Let’s see if he can keep his iPad privileges when he returns to school tomorrow.

Thursday, January 15, 2015

Update, Depression

After the awful day of anger and aggression on Monday, Kai has had two pretty good days. He had no major incidents at school, and has come to terms with losing his iPad privileges for a week.

At home he seems mostly jovial, using the time he would have been on the iPad to read more of the many books he received over the holidays.

Of course, we are always on edge that this good period won’t last long, and the anticipation of when the next dreaded email from school will come keeps us from enjoying the moment too much.

But aside from the worry over when Kai’s next aggressive incident will occur, a growing concern lately is that Kai may be depressed, or at least, have negative feelings that will result in depression.

Over the past several weeks, there has been more than one occasion where Kai has expressed that no one at school likes him, and/or that he wants to kill himself. It is a frightening thing to hear from your child.

At this point, I don’t think that there is an imminent danger that he will carry out his words. He tends to use extreme language to express his anger and frustration, and we don’t take each one literally.

But still, there is concern, obviously.

I wonder what is driving these feelings.

At home, we try to balance toughness with love. I push him to do things he doesn’t want to do, whether it is extra math or reading, or more exercise. And when he has incidents at school, we give him consequences at home, too. The goal is to build good habits and teach him right from wrong so that he will grow up to have a good life. And along with the toughness we try to let him know that he is loved, and spend a great deal of time with him doing the things he loves. Sometimes I feel like we’re not being tough enough; other times I worry that he doesn’t understand that he is loved.

When he talks about school, he doesn’t seem to have very many positive feelings about his classmates. He is definitely an atypical kid, even when compared to other atypical kids at his therapeutic school. I don’t’ think he considers any of his classmates as a friend.

One aspect of that is that he seems to misunderstand others’ actions. Last night he told how the class voted for their favorite recipe among all that each student submitted. It seems no one voted for his recipe of Mom’s chili. The winning recipe was some type of dessert dish. I can see why kids would favor chocolate over anything else, but to Kai that was just further evidence that “no one likes me.” So perhaps he just misunderstands others, but I also think his feelings are at least partially grounded in reality.

I don’t care if he has a lot of friends, but it obviously is bothering him that he doesn’t feel like he has any. And those feelings will likely be even harder for him as he goes to middle school next year.

What to do? What to do?

Tuesday, January 13, 2015

Anger and Frustration

We received an email from Kai’s teacher mid-day yesterday. At first, I thought it was a pleasant email.

She told us that he would be joining the other fifth grade class just for math as that classroom had a group that was working at a faster pace and we had thought that Kai was ready for more challenging work in the subject.

We also thought that Kai would be happy with the news as he has long considered the other class the “real” fifth grade classroom and he was extremely disappointed when he was not placed in that room at the beginning of the school year, a feeling he has maintained even all these many months later.

The teacher then went on to tell us that because Kai had written a very persuasive letter to her, she agreed to get two pet hamsters for the classroom.

So far, so good.

But then she went on to tell us the bad news.

This was the first day of the hamsters and the kids were very excited. The teacher asked them to talk quietly so as to not scare the new pets. Apparently another student did something to upset Kai and he started to complain in a loud voice. He did not quiet down as asked, and was asked to take a break away from the pets, where his anger continued.

Later, he was the last one called to line up for PE. He does not like being last, and no matter how often we tell him to shrug off things like that, he too often gets upset. In this case, he slammed the classroom door, spoke of harming the hamsters, and then got violent with the staff when they asked him to take a timeout. As before, he ended up destroying another shirt, plus his new fleece jacket as well as his new eyeglass strap.

When I got home from work, he was still mopey, hiding out under the covers in his bed. After calling him to come down to dinner several times, he finally came to the kitchen where he knew he would have to talk about the unpleasant events at school.

If he had said how sorry he was for destroying his clothing and hurting the staff, and if he had expressed any regret at all, we would have been somewhat sympathetic. But, as is usually the case, he started to rage about how terrible the staff was and how he would never go back to that classroom again.

“And that’s all I’m going to say about it!” he yelled.

I told him that he had lost his iPad privileges for a full week, his longest such punishment yet. “And that’s all I’m going to say about it,” I said.

Though I didn’t actually stop there. As Kai raged about the punishment, my wife and I explained, yet again, how he needed to accept responsibility for his actions. And to not blame others. And to not react so angrily when he is frustrated.

Of course, he only got angrier when we spoke. We told him to go to his room and to calm himself down.

We could hear his shouting for a good long time before he quieted down. When he finally came back down to the kitchen, he said he was sorry for getting so angry and behaving inappropriately.

He said in his anger he had pulled out one of his teeth, and he was holding a tissue full of his blood, as well as his tooth.


He said he wanted to put the tooth under his pillow for the Tooth Fairy. We told him that the Tooth Fairy doesn’t come when you pull out your own tooth like that.

This morning, he got out of bed very slowly, but he finally did get up. It appears that he will go to school without too much of a struggle.

And so we will await to see if we get another dreaded email today.

But we question what to do now.

Kai’s anger and frustration is very evident. But ours is growing along with it. Well, that along with a growing feeling of despair.

We are considering stopping our Point Store incentive as the motivation to earn points does not seem to affect Kai when it matters most, which is when he is frustrated and angry. His failures to achieve goals seem to only get him depressed.

My wife wants to cancel all birthday presents for him as he has to pay back all for all the property he has destroyed. I can appreciate the sentiments but am guessing that she will relax her views just a bit as his birthday nears.

So what will we do? What adjustments can we make?

As frustrating as this is as parents, I think it is important to maintain hope that Kai can find a way to control his emotions better. Right now, he doesn’t believe he can. And so, he will need us to believe for him until he learns how.

That won’t be easy.

Monday, January 5, 2015

Winter Break Activities

Kai returns to school this morning.

He made the most of winter break.

He worked on the various kits and sets that he received for Christmas and Hanukkah.




We made our annual visit to the Chicago Botanic Garden where we saw Wonderland Express, the exhibit of famous Chicago buildings made from plant materials, with model railroads running through them.



We tried going ice skating, though the ice in the outdoor rink wasn't quite thick enough yet.


We went sledding.


He also started reading from among the many books he received, did online math through the Khan Academy website, and we played a new board game as well.

It will not be easy for him to get back into the school routine. But it is time. I think my wife is looking forward to it.




Thursday, January 1, 2015

Happy New Year





Best wishes for a happy and healthy year in 2015!

Friday, December 26, 2014

Our Christmas

‘Twas the night before Christmas and the creatures were all stirring.


But Santa came to our house anyway.

And Christmas morning brought excitement.


Kai was really good. He didn’t get up too early (unlike some dogs), and helped come up with plans to alternate between opening presents and taking the dogs for a walk, half at a time.


When it came to opening presents, he chose the ones for everyone to open. Some of his he ripped open.


And some he took peek first as if to confirm that it was what he was hoping it would be.


But he enjoyed all of it, as all of his Santas were very generous.

And then it came time to play with his new presents.


He took time our for dinner.


And by the end of the evening, all of the creatures were worn out, not stirring at all.


Hope your holiday was just as delightful.

Wednesday, December 24, 2014

Holiday Fun

It has been a busy few weeks with numerous holiday activities.

We had two family get-togethers for Hanukkah so Kai has already enjoyed opening and playing with several presents.



We went to get our Christmas tree.


We baked and decorated gingerbread cookies.



And several of our holiday houseguests have arrived (with more yet to come).


Merry Christmas, everyone!


Monday, December 8, 2014

More Shredded Clothing

Kai has had a long history of ripping his shirts to shreds when he gets upset at school. He hasn't done that too much lately, though. But this past week he expanded his repertoire. This time he totally shredded his pants.


In case you can't tell from the picture, both pant legs are ripped from top to bottom, plus there's smaller tears in the waistband.

Frankly, I was impressed with his strength as these were rather thick sweat pants. And they were almost new, by the way. As with his shirts, Kai seems to rip only the clothing that is new and in good condition.

Our understanding is that he got upset when one of the classroom staff was going to read a story to the class. Originally the students were told that they could sit at their desks, but then they were instructed to sit in the back of the classroom. For some reason, this seemingly minor change in plans got Kai upset, and he could not control his anger.

Earlier in the week he got upset by a similar change in plans. That time the prompt was when the class had to unexpectedly eat their lunch in the common area instead of in the classroom when another student was having some issues in the classroom.

While Kai has made progress in many ways, his inability to control his anger remains a big issue, and one that will keep him from realizing his potential.

The one good thing was that he accepted the consequences much better this time. He had a good weekend, despite losing the use of the iPad for much of the time.

He spent some time playing with Legos, making his own creation - a Lego mini golf course.


In the past he has mostly just followed the instructions that come with the sets, so it is good to see him going beyond the sets and being creative.

So, we had some good to go with the bad. I guess that's par for the course.


Monday, December 1, 2014

Thanksgiving Weekend

We made our annual trek out east to visit my sister and her family.

For Kai, one of the things he most looks forward to is getting to play with his cousins’ Nerf guns.


He also bonded with his cousin over a Pokemon game on the Nintendo 3DS.


Kai has had his own 3DS for many months now but rarely plays with it. But after getting several tips from his cousin, he couldn’t wait to try it himself when he got home.

Of course, the Thanksgiving meal with everyone is always a highlight as well.


Everything was just as delicious as it looks.

This year, for the first time, we took a day trip into Washington D.C. to see the main sights.

We started at the Capitol building.


Kai enjoyed the visitor center where they had an exhibition that gave a brief history of the country.

From there, we walked over to the Air and Space Museum. Kai did not seem all that interested in the famous aircraft on display (including the Apollo 11 lunar lander, and The Spirit of St. Louis), but he loved looking at the more scientific displays that explained space exploration and planets.


I was feeling great about how well Kai was doing in a crowded museum.

After that we took a trolley tour that would take us around all of the sights. After doing so well at the museum, he had a harder time during what I thought would be the easier part of the day. He obsessed over how many stops the trolley would make and how much time the whole tour was.

He was in a bad mood when we got off the trolley to see the Lincoln Memorial and Washington Monument, though we did manage to get him to pose for a decent picture.


By the time we got to the White House, he was more content knowing that the tour was almost over.


But I don’t think he was really happy until we got back to my sister’s house and he could use the iPad with his beloved uncle napping next to him.


Hope you had a nice Thanksgiving as well.

Monday, November 24, 2014

A Pre Thanksgiving Turkey Dinner

We didn't think it was a good idea to take my dad on our annual Thanksgiving trip this year so we did the next best thing; we had him over to the house yesterday and Skyped with my sister and her family.


My wife prepared a turkey dinner for only the second time in her life.


It looked nice, and I thought the turkey was moist and tasty, but we both agreed that the dinner didn't compare to what my sister and her crew prepare. Still, I know my dad enjoyed it.


At one point my father needed to use the bathroom. I was about to tell him where it was and was surprised that he actually remembered this time. Kai was surprised, too.

"That's the first time you remembered something at our house, Ojiichan!"

We need to remind Kai about using discretion before saying things. Fortunately my dad is hard of hearing.

Today, Kai's school has its annual Thanksgiving lunch. Last year he raised a big ruckus, apparently when he was served a dish that he didn't want.

This year we tried to prep him that it was wonderful that his school does this, and what was the point of the holiday anyway?

"To be thankful."

Yes. So enjoy the meal and don't get angry.

As I served him the green bean casserole last night, he said, "It's not polite to say something is yucky; you should just eat it, right?"

Okay, so maybe he is learning, a little bit, anyway.

Wishing all of you a very happy Thanksgiving!


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