Learning Chess

Kai’s grandfather is a chess aficionado. As such, I’m sure it would give Papa great satisfaction to pass along his passion to his grandchildren. But chess is not a game for very young children, and Kai wasn’t ready to learn it.

Until now.

A few years ago, my wife and I celebrated when Kai went beyond the games of pure chance that really young kids play. No longer did we have to keep playing Candyland or other mindless games over and over. At last, playing games would be fun for us too now that we could play some that involved thinking and strategy.

We started with games like Uno that combine luck with some skill. But these days Kai is quite proficient at games that are completely skill based like Qwirkle and Blokus.

But, while Kai was able to learn these games of skill, chess was another story. Chess is a bit more complicated, with pieces that move differently and with a number of exceptions to how moves can be made.

For those not familiar, just with the pawn alone, there are a variety of moves to learn. While a pawn usually moves only one space at a time, each pawn can move two spaces on its first move. It usually moves straight ahead, but has to go diagonally to capture another piece. When it reaches the end of the board, it no longer is a pawn, as it can be converted into any piece. And, let’s not even get into “en passant” which is a special move that a pawn can make.

Earlier this year, Papa gave Kai a chess set. But, at that time, Kai was not yet ready to learn.

While we were on vacation, though, watching the same Donald Duck math dvd that showed a pool table, Kai took notice when it briefly showed a scene about chess.

And so, after we got home, he asked to see the chess set that Papa had given him.

We set up the board and I explained the basic moves of each piece. My wife did not know how to play either so it was a joint lesson.

After the lesson, they played each other. Kai beat Mom, with just a little bit of help from me.

This past weekend, we visited the grandparents. We did a lot of fun things, but one anticipated moment was the first chess match between Kai and his grandfather.

It wasn’t exactly the match of the century. Kai has got a lot to learn about playing chess, and Papa passed along a number of tips as they played.

But it was an introduction to sharing his grandfather’s passion for the game. And in that regard, the match was noteworthy.

And just maybe, Kai learned a little something from his grandfather’s lessons. The next day, without anyone’s help, he beat Mom.

Contemplating Medication

“For many parents of kids with autism, there comes a time when they have to consider medication for their child. No, there is no cure for autism, but there are drugs that treat the anxiety and attention deficit that often accompanies autism. That time for consideration arrived for us recently…”

This week’s Patch column takes a closer look at our decision to use medication to treat our son’s anxiety and attention deficit. Read the full story here.

“I Just Want to Eat the Vegetables”

Actual dinner conversation at our house:

Me: “You have to eat your chicken, Kai.”
Kai: “But, I don’t want to. I just want to eat the vegetables.”

Yes, I must have the only kid in America who would rather eat vegetables than meat. Whether it is chicken, pork, beef, or turkey, my son often prefers to eat the veggies instead of the meat dish.

Carrots and celery have long been his favorite; I think the crunchy texture appeals to his sensory needs. But, these days, he also loves asparagus, cucumbers, onions, and peppers, and will readily eat green beans, edamame (Japanese soybeans), and even broccoli.

At dinnertime, he will usually eat the vegetables first, especially if carrots and celery are on the plate. Then he will have some rice. After that, he will ask for more vegetables. Usually I refuse to give him more until he eats some of the meat, and that is when we can have some version of the above conversation.

It wasn’t always that way. When he was young, we thought Kai would never eat anything other than hot dogs and bacon. But these days, he only likes bacon when my wife cooks it with some vegetable like kale or asparagus or spinach. And the only time we have hot dogs now is when dad has to make a quick lunch and nothing else is in our refrigerator.

On our last visit to our DAN! Doctor, he showed us test results that indicate that Kai’s protein levels are lower than they ideally should be, likely because he is not having enough meat. So now we are making a bigger push to get him to eat meat.

Of all the challenges I thought I would have raising a child, this was one that never entered my mind.

A vegetarian wannabe for a son? I never would have thunk it.

Sleeping in School Is Not a Good Sign

My son fell asleep at school yesterday for the second time this week.

Kai napped as a baby and toddler, of course. But, I think it is about four years since he regularly took naps.

During the bulk of these past four years, he rarely slept through the night. Yet he constantly amazed us with how much energy he had during the day regardless of how little sleep he got.

But recently, he has been lethargic fairly often. Yesterday, in addition to the nap at school, he was very quiet during a therapy session in the afternoon. He rarely spoke to the therapist and showed no energy. It was completely unlike the effusive Kai we’ve grown accustomed to.

So, what has changed?

We think this is the result of the new medication he is taking. And if it is a side effect that continues, we will have to ask the doctor to make a change.

We were hoping that the medication would make our son more attentive at school. But how attentive can he be if he is sleepy?

Of course, later in the day, after dinner and bath, when we wanted him to wind down for bedtime, he was full of energy. He engaged us in a game of his own invention. We started out playing the periodic table game that he has, but he soon infused it with a bit of Monopoly, and mixed in some Pokémon as well. My wife and I tried to play along, but were completely befuddled as Kai prattled on nonstop about the rules of the game he was making up as we were going along.

Ah, now that is the Kai we know and love.

Back to School Anxiety

“…For us, though, in addition to all that, “back to school” brings on a mix of feelings that are all rolled up into one huge ball of emotion.”

This week’s column in the Patch takes a look at all the anxiety surrounding the start of school. Click here to read the entire article.

A Pleasant Piano Lesson

My son’s piano teacher came over the other day and Kai played nicely. That is a first.

When Kai’s teacher arrives for the lesson each week, the usual routine has been that Kai runs away to hide in the family room. Then, he acts silly and has to be dragged over to the piano. And when he does start playing, it is only a matter of time before he protests that he does not want to play any more.

So it was quite a surprise this week when Kai walked over to the piano on his own when his teacher came. It was shocking when he played nicely, without protest, a song that he had trouble with just the day before when practicing with Mom. And I almost fell out of my seat when it came time to learn a new song, and Kai paid attention to the teacher and then played the song well.

I really don’t know what caused the huge change. He has now been on a new medication for several weeks, one that the doctor said may take about that long to start working. So, we will be monitoring all of Kai’s activities closely to see if we notice other changes.

I hope this will not be a one-time phenomenon. But, I don’t want to get my hopes too high just yet.

We shall see.

End of Summer, Time Flies

This was the last weekend of the year that the swimming pool in our neighborhood was open. Our son wanted to go there before it closed, so we went for two last visits over the weekend.

For the first time, Kai went over to the really deep part of the pool. This t-shaped pool is tailored for families, with the bulk of the area no deeper than four feet. However, a section at the base of the “T” goes down to ten feet.

Until now, Kai had been too afraid to go past the 5-foot mark. But, on these last visits, he went underneath the rope and ventured over to the deep end.

At first, he clung to the side as he moved along the edge until he came to the 10-foot mark. Later, he swam across using his kickboard. And then, he swam a short distance without the kickboard.

He is now a much better swimmer than I am. Frankly, I don’t like going over to the deep end. But, Kai has conquered his fears of the water and is now unbelievably comfortable.

With the pool closing, it is a sure sign that summer is almost over. In some ways, it feels like summer just began, and so this is a reminder of how time flies.

But I don’t need the changing of the seasons to tell me that. I can see that just by observing how much my son has changed.

And so, as we Midwesterners appreciate summer because it doesn’t last very long, I will also appreciate my son’s childhood, as that too, shall pass quickly.

“I Am Nice”

Kai’s first homework assignment from school was to complete the sentences on the “All About Me” box that each student received.

When I made him do the assignment, he got angry because he wanted to play Pokémon instead. So, for the “Three Words That Describe Me” he wrote “Angry, mean, and mad.” My wife did not think that was appropriate so she later made him do it over. By then, he had calmed down and chose “Nice, joy, and happy” as his three words.

My favorite, though was what he put for “A little-known fact about me is:” He filled in “I am nice.”

Hah. But, I knew that.

First Day of School – Followup

It was an uneventful first day of school. And that is a good thing.

There were no phone calls to tell us about a major incident. There were no emails to explain something bad that happened.

And, when Kai came home from school, we opened his backpack to find a rather nondescript point sheet. It wasn’t one of his better days. But it was far from his worse, too. Most importantly, the “Was he safe?” row was filled with “Y” which means he was safe all day.

For now, we would be thrilled with a month full of days like this.

One day down. Now, on to the next.

First Day of School

It’s that time already: today is the first day of school.

My son will now be a second grader. It is not as momentous as when he entered kindergarten. But the start of a school year is always a milestone to note. If nothing else, it marks the passage of time.

Change in routine is always hard for our son. Even the subtle difference between Kai’s summer school schedule and his regular school year schedule was tough to adapt to. Now, being off from school completely for about a month, it will be an even bigger adjustment for him.

With Kai having attended summer school, his break really wasn’t all that long. Still, after being on vacation for much of the past few weeks, and now having settled into a relatively light schedule at home since we’ve been back from our trip, it feels like it has been a long time since he was in school. And that is going to make going back to school a challenge for him.

For the past couple of days, he has been saying that he doesn’t want to go to school. He says that he is sick and needs to go to the doctor’s instead.

Following the pretty terrible session of summer school where he seemingly had incidents every day, and our vacation where we faced many challenges, this does not make us confident that all will go well as he returns to school.

So, we will be anxious to see how it goes on this first day.

Regardless of how it goes the first day, we hope that once he settles back into the routine of the regular school year, he will get back on track.

I’m strapping on my imaginary helmet and seatbelt. I think it will be a bumpy ride.

Okay, I’m ready. Here we go…

A High Mountain, An Emotional Low

We experienced many highs and lows on our vacation, with perhaps our lowest low coming at a high point, at least in terms of elevation.

This week’s Patch column looks at our experience hiking the trail to the top of Clingmans Dome, the highest point in the Great Smoky Mountains National Park. Click here to read all about it.

NC Trip – Playing Pool

When our one-week stay in the Outer Banks ended, rather than rush straight home, we decided to see a few interesting places along the way. Toward this, we drove all the way across the state of North Carolina to the Smoky Mountains.

We rented a cabin on the Tennessee side of the Smokies, and enjoyed a beautiful view right from the front porch. Our son did not care about that. He was happy because our cabin had a pool table.

Colored balls with numbers from one to fifteen? How wonderful!

Coincidentally, for the long car ride, we had just given him “Donald in Mathmagic Land”, the Academy Award-nominated short film that teaches math in a fun way. The film includes a billiards scene to explain angles.

So, Kai was excited about having a real pool table to play with. He loved setting up the balls and rolling the cue ball with his hands to knock in the other balls. Though I am not an expert by any means, I tried to explain the strategy and how the balls would go depending on the angle they were hit.

We all had fun, as Kai used his hands to play, while my wife and I used the cue sticks.

At the Outer Banks, one of Kai’s favorite activities was playing miniature golf. It wasn’t because he enjoyed the game per se, but because of the numbered holes from one to eighteen.

Miniature golf and pool – yeah, I know we could have done that if we just stayed home. But vacations are not just about seeing new places, but about having fun, too. So we tried to find ways to let Kai have fun. And you know something? When he was having fun, we were, too.

NC Trip – Wright Brothers Memorial

I could not fathom visiting the Outer Banks without seeing the Wright Brothers Memorial. After all, it is the place where history was made.

And so, on our last full day in North Carolina, we visited the site where the Wright Brothers flew the first power-driven aircraft to successfully make a controlled, sustained flight.

Kai had learned about the Wright Brothers from a Peanuts video. But I don’t think he was all that interested in seeing the actual place. Still, he sat through a 20-minute film about the first flight.

But once we started walking around the grounds, he started complaining.

We didn’t take more than a few steps toward the monument at the top of the hill when he started saying that he was tired. We scrapped plans to see it.

Instead, we proceeded to walk directly to the numbered stone markers that show how far each of the brothers’ four flights traveled. We thought that with Kai’s love of numbers, he would surely enjoy seeing them.

But, no.

He insisted that he wanted to leave. I, stubbornly, insisted that he at least see the markers.

We finally got him to walk to each marker. He wasn’t happy. But he saw it. Whether he got anything out of seeing them is an open question.

It certainly would have been a lot more pleasant just to let him stay at our rental house and play Mario with his cousins (who visited the Memorial earlier). And maybe I’m trying to treat him like any other child when he really isn’t.

It is something that I will ponder before we take our next vacation.

NC Trip – Sand Dunes

On our first full day in North Carolina, we visited Jockey’s Ridge State Park where they have the highest sand dune in the Outer Banks. It looks like a desert in many spots, and you would have thought that we had left Kai in the middle of a desert for all of the screaming that he did.

He actually had fun there at first. He enjoyed seeing his cousins race up one of the dunes, and then wanted to join in the next race with them and me. But after awhile, the heat and climbing got to him and he had had enough.

And when he reaches his limit, there is no getting him to calm down and persevere. He starts whining that he wants to go home, and soon it turns into screams.

He wanted us to pick him up and carry him. We did not, as he weighs nearly 60 pounds now and was fully capable of walking. We did offer him water and plenty of time to rest, but that did not soothe him. Instead, he got angrier, saying mean words and attempting to spit at us and hit us.

We hadn’t gone all that far into the dunes, but that walk back to the car seemed like forever.

Day 1, and it was a preview of what we would experience periodically throughout the rest of our vacation.

Over time, I have a feeling that the bad memories will fade and we will remember the beauty of the dunes and our laughter after the races.

But I don’t want to totally forget the bad moments either. It is part of our reality right now. And maybe one day we will look back and recall how Kai used to be when he could not tolerate many things, and hopefully marvel over how much he has changed.

NC Trip – Diving for Shells

During our stay at the Outer Banks, Kai’s favorite activity was looking for shells in the Albemarie Sound. The Sound was convenient, just down the stairs from the back of the house we had rented for the week. And Kai loved the calm waters where he could easily swim. So, he went diving every day, while I was left holding the bag (to collect the shells).

The shells are not really something you’d want to collect, most being broken and none being very pretty anyway. But, since Kai made such an effort to collect them, I wanted to save them. Now, as we are making our way home, they are stinking up the back of our car. And I love it because it reminds me of when my son was most happy on this trip.

A Vacation Grinch

We have been on vacation for almost two weeks now, taking a road trip out to North Carolina. There have been a lot of ups and downs along the way.

We are now on our way back, making a few stops along the way. I’ll be writing all about our adventures in the blog soon, but in the meantime, please check out this week’s Patch column to read about the first part of our trip.

Click here.

Favorite Photos – PlayDoh

Today’s favorite photo is from when Kai was three years old. He was obsessed with letters back then. Even when he did PlayDoh, he never shaped them into animals or other figures. All he wanted to make was letters and words.

S-O-S Best of the Best, Edition 9: Therapy and Special Needs Kids

This month’s S-O-S Best of the Best (BoB) takes a look at the therapy experiences that parents of children with special needs have had.

My own post on the topic is about the wonderful ABA therapist who guided us through the early days of our son’s diagnosis, and helped him make such great progress.

Click here to read about others’ experiences.

Favorite Photos – Exercising in New Mexico

On our last day in New Mexico this spring, the three of us walked the scenic trail from hotel down to the Rio Grande River for one last time. Along the way, there are exercise stations, each one numbered, and that served as motivation for Kai to keep walking. He was able to do a little bit of some of the exercises, but this one he just enjoyed running along the bars from one end to the other. I just love the playful expression on his face.

Favorite Photos – Riding the Steep Train

Today’s photo is one that was taken during the summer of 2009 when visited Dubuque, Iowa and rode on the Fenelon Place Elevator, described as the world's shortest and steepest scenic railway.

This photo isn’t a favorite just because of the picture per se – though Kai looks great, me not so much – but, because of what happened immediately before.

We were waiting for our turn to ride on the railcar when a man joined us in line and spoke to Kai. He asked Kai if it was okay if he rode with us. Kai didn’t speak nearly as much back then, and he only occasionally answered questions. So, I was surprised when, after a pause to think about the man’s question, he replied, “Okay. But, I want to sit next to Daddy.”

Our New Living Room Furniture

We finally got some furniture for our living room. Well, to be more correct, we got something that is now in our living room. Read all about it in this week’s column in the Patch.

Favorite Photos – First Girlfriend

In preschool, Kai had a crush on a girl in his class. He was not good at communicating back then, particularly with other kids. She mostly ignored him but I understand that he kept swooning over her all year. At the end-of-school-year party, the girl finally gave him some attention. She pushed Kai around the yard in this car. It was the highlight of the whole year for him. I think his smile says it all.

Favorite Photos – Watermelon

There isn’t a great story behind this picture. I just love the simple happiness of watermelon on a hot summer day.

Favorite Photos – Laughing Hysterically Over a Pirate Game

I will be featuring some of my favorite photos of Kai over the next couple of weeks.

Today’s picture is from the summer of 2007, when Kai was three years old. His grandfather had just come for a visit from Japan and brought Kai a gift of a pirate game. The game involves players taking turns sticking small swords into a barrel until the pirate pops out. Between the funny sounds and the surprise of the pirate popping out of the barrel, Kai thought it was the funniest thing and he laughed jubilantly as he kept playing the game over and over.

There’s nothing like seeing your child have so much fun to bring joy to yourself, too.

Pennies for Peace

This week’s column in the Patch takes a look at how we used Kai’s interest in collecting pennies to stop him from snorting. Regular readers of the blog know that his interest in pennies has already waned and he is now on to Pokémon, but I can’t keep up with the rapid changes in Kai’s activities in the Patch. Anyway, click here for the article.

Apologies to those who checked here yesterday for a post. The column did not run yesterday as scheduled, perhaps because my article on the autism forum was still on the front page of the Patch. To get timely updates to know when I have posted a new entry, please “Like” Hanabi Boy on Facebook over on the right side here, or click to follow the blog (further down in the sidebar of this blog). Thanks!

More Pokémon

When last we left the topic of Pokémon, my son had expressed that he might want to switch to collecting Yu-Gi-Oh cards instead. But, since we had already gotten a bunch of Pokémon cards, I put my foot down that we were going to stick with them. And Kai turned out to be happy with that.

In fact, he was Pokémon crazy all weekend. He found the Pokémon website that gave an animated explanation of the rules of the card game, and we played a modified version of it many times.

The actual rules are quite involved, so we simplified it quite a bit. Over time, if he maintains his interest, I will try to introduce more of the complicated rules, that is, if I can learn them myself.

I have mixed feelings of Kai’s latest obsession. Pokémon is not as academically productive as learning the periodic table, or at least not as productive as how I think knowing the periodic table will be once he gets to that topic in school in six or seven years.

But, in terms of having the interests of a “normal” kid, Pokémon may be as close as Kai gets. And maybe having a common interest with other boys will help him to socialize with them.

Oh well, perhaps I shouldn’t worry about all that. Right now, maybe all that matters is that my son has found a new source of entertainment, and that he is having fun with it.

By the way, with the motivation to collect the cards, Kai’s snorting has all but completely stopped. And with that, I think we can stop using the Pokémon cards as incentive.

Instead, we will now use the cards to try to reign in an even more difficult behavior: Kai waking me up every night. Let’s see how powerful this Pokémon really is.

Creative Solutions Highlight Autism Forum

I put on my reporter’s hat and covered a local autism forum for the Patch. What I found most interesting were the various solutions that individuals came up with on their own to help family members with autism or other developmental disability. Read all about it here.

25 Meters

25 meters.

That is the length of the swimming pool where my son as been taking lessons.

This week, for the first time, Kai swam the length of the pool completely on his own, without wearing a noodle, without stopping, without any help.

My wife was very excited to tell me the news when she got home from his lesson. On his first attempts, he got scared and paused along the side of the pool. But then he gained confidence and went the whole way from one end to the other. His form wasn’t perfect, she said, but he did it.

I was thrilled to hear the news, of course. But I think my wife was even more overjoyed. And that is because, months ago, she was very skeptical that Kai would ever be able to do it.

Back then, he was literally kicking and screaming not to go to his lessons. He didn’t want to get into the water, let alone try to swim. And when he did get into the water, he was very anxious. He had to have his security blanket, a foam noodle, around his body as it helped keep him afloat.

To try to overcome his resistance, my wife had promised Kai that if he ever swam the length of the pool on his own, he would get a certain very special reward (which shall not be mentioned here). I was upset when I found out about that promise. The reward was much more than I wanted to promise. But she said that I had nothing to worry about. Kai would never be able to do it, she said.

I wasn’t quite as skeptical. But I have to admit that the progress he has made has come even faster than I thought.

25 meters.

At the beginning, it could have been a mile. Now, it doesn’t seem so far.

Don’t you just love it when your kids exceed expectations?


P.S. Fortunately, Kai has not mentioned the prize, so I am hoping that he has forgotten all about it. And I don’t want anyone to remind him of it!

Noticing A Change

About ten months ago, I wrote about my son’s reaction to being asked to switch seats in his cab to school. He had always sat in the same seat and the sudden change raised his anxiety and he strongly resisted.

Since then, he has been back in his usual seat in the cab.

Until this week.

Kai’s usual taxi driver is off for a few days.

On Monday, we waited for the cab to pick him up to take him to school. It was late.

Usually, when the cab is even a couple minutes late, Kai starts to get upset. It makes for a rough start to the day as it is difficult for him to wait and then he is in an anxious state when the taxi arrives. And sometimes that can carry over to his performance at school.

But on this morning, he stayed calm. In fact, as the time passed, I was the one to get anxious, not Kai. I worried that the new driver had forgotten to pick Kai up, or that the driver had gotten lost. I was concerned that Kai would be late for school.

Fifteen minutes after the time that our usual driver arrives, I could not take it anymore. I told Kai that I would take him to school.

He remained calm in the car as I drove. And he was happy when he got to school.

The next morning, the taxi arrived at our house on time. But the substitute driver had the kids she picked up first in different seats than usual. That meant that Kai would have to sit in a different spot also.

Uh oh. I was sure that would set Kai off.

But, it did not.

He accepted his new seat without protest.

The next morning, the driver had him sit in another different seat. Again, he was okay with the change.

It seems like such a small thing. But, showing flexibility where there wasn’t any before is quite a nice step in his progress.

Amidst some recent challenges, it is important that we notice the positive changes Kai is making as well.

And so this increased flexibility is duly noted.

Collecting Pokemon Cards

So much for pennies.

I wrote last week about my son wanting to collect pennies and how we used that as motivation to get him to dramatically reduce the snorting he has been doing.

But after a few days, he lost interest in the pennies. Perhaps he caught wind of the debt crisis and figured out that his pennies won’t be worth anything in a few years anyway.

Without the motivation to collect pennies, Kai’s snorting returned, though not as much as before.

It again made us wonder if the snorting is a tic that can be controlled for short periods of time, but sooner or later will emerge again.

This past weekend, Kai told Mom that he was interested in collecting Pokemon cards. He showed some interest in them before when he saw his cousins in Virginia play with their cards. But, he hadn’t mentioned the cards again until this weekend. I think his renewed interest is because some of the kids in his class have them.

And so, this weekend, we told Kai that he could earn a Pokemon card for every hour he went without snorting.

I had a stack of cards that one of his cousins had given me back when he saw how fascinated Kai was. I had never given them to Kai because I couldn’t figure out how to play the game and didn’t want to deal with Kai’s frustration of not being able to play. But, for now, he only seems interested in collecting the cards and not in playing the game.

I think Kai likes the Pokemon cards because they have numbers that indicate each character’s respective strengths and weaknesses. The colors and pictures of the amusing looking characters also are attractive. He has never seen any of the videos.

So, with Pokemon on the line, Kai snorted only once the whole weekend. I went through nearly the entire collection of cards that my nephew had given me.

My wife had to rush out on Monday morning to get more cards. I think we were the only people in America who did not know where to get Pokemon cards so we were in a mild panic about not finding any. But, it turns out that they are available everywhere.

My wife got two decks with 60 cards per deck. That should last a good long time, I thought.

As I handed Kai his first card from the new deck, I expected that he would be excited.

But before he even looked at the card, he said that he now wanted to collect Yu-Gi-Oh cards instead.

Sigh. Do they have those at ToyRUs?

New Twist On An Old Hobby

When I was a kid, I collected baseball cards. My son’s collecting preferences, however, are in a different area. Check out my latest column in the Patch for the full story.

Best Friends

Our son’s best friend and his family came over for a play date this weekend.

A few months ago, we didn’t even know that Kai had a friend, let alone someone who would be considered a best friend. But we had heard from his teachers how much Kai liked this one boy in his class. And then we saw them together on a few occasions since then and it was obvious that they had a special bond.

On this occasion, they were clearly happy to see each other. They didn’t interact with each other all the time, but they did so often. And that was a lot more than Kai interacted with other kids on play dates we had set up for him when he was younger.

My favorite moment was when we started walking back to our house after they had played at a nearby playground. The two boys held hands. And they maintained the embrace all the way home.

My son has a good friend. It’s enough to bring a tear to my eye.

The Magic Show

My son’s school had a magic show this morning.

Kai was the greeter, welcoming all the parents at his classroom door. And while he did that job well, I think he also wanted to be the emcee. When the show began, he kept announcing the next act from his seat next to us. My wife tried to get him to be quiet, but it was a futile effort.

And then it was his turn to perform.

“Kai the Incredible” performed a trick called The Very Hungry Bag. He hesitantly read some parts of his script as he put a coin into a paper bag. But, when it came time to wave his magic wand, he dramatically adlibbed a countdown before revealing that the coin had disappeared. Then, with some flair, he flipped his magician’s top hat away.

My favorite part came after he finished his trick. He stayed standing up at the front of the room and loudly and confidently began to announce the next performer. The boy who was actually the emcee came up, tapped Kai on the shoulder, and told him to go sit down. I think Kai would have been happy to do the whole show all by himself.

The boy who once did not speak could not be shut up. It wasn’t magic that got him to speak. There was a lot more work these past five years than just saying abracadabra. But, now, with his exuberant personality unleashed, I think it would have taken a real magician to get him to be quiet.

Budding Pharmacist?

My son is a collector. I recently wrote about his introduction into his grandfather’s hobby of collecting tins. More recently, Kai has taken an interest in accumulating pennies. In addition to these, he has his collection of Ugly Dolls.

But perhaps his most eclectic collection is his stash of used medicine containers.

We have been doing biomedical treatment with Kai since shortly after he was diagnosed with autism. As such, he gets a steady dose of supplements including vitamins and minerals, fish oil, and other natural supplements, in addition to some prescription drugs. These treat things like gut issues, food sensitivities, immune system deficiencies, neurotransmitter malfunctions, and yeast overgrowth, among others.

We mix most of these with apple sauce and give it to him at various times of the day.

Lately, he has become more interested in preparing the supplements. He is particularly excited when a container is running low. When it runs out, he takes the empty container and puts it on a shelf in his bedroom.

He is amassing quite a collection. (The supplement containers shown here are in front of Ugly Town that his grandfather in Japan made for him the last time he visited).

This week, we had another appointment with our DAN (Defeat Autism Now!) doctor. For the first time, Kai initiated a conversation with him.

“Um, excuse me,” he said. “Can you give me more medicines?”

He asked the doctor for different supplements, not because he enjoys taking them, but because he wanted new containers for his collection. And when the doctor happened to oblige with recommendations for a few new supplements, Kai was happy.

When we got home, Kai opened his “medicine store.” He took all of the new supplements and arranged them on the kitchen table. He didn’t want to go to bed; he wanted to keep playing with all of his medicines.

Hmm, I wonder: Is this how most pharmacists get started?

A Bonding Moment

I experienced an incredible connection with my son the other day. And it arose out of one of our most frustrating moments.

With my son enrolled in a bicycle riding class this summer and making more of an effort to learn to ride, I took him out for more practice over the weekend.

After my last exhausting practice session with Kai, I realized that balance was the biggest issue with his riding. I was doing all the work of keeping him on the bike. He did not try to adjust his body to maintain his balance and he depended on me to keep him upright. I thought that as long as I held onto the bike as he pedaled, he would never really learn how to balance himself properly.

And so, this time, I decided to try a different technique.

This method employs a modified bicycle with no pedals on it. The idea is that the child sits on the bike with his feet on the ground, and then moves by pushing with his feet. Once he becomes adept at scooting along, he is told to pick up his feet and coast. When scooting and coasting are mastered, the child can learn turning and steering.

Because the child can put his feet down at any time, the risk of falling is minimal. And when he masters scooting, coasting, and turning on this modified bicycle, he is ready to ride with pedals.

I had Kai get on a small, modified bike that we got from a friend just for this purpose. Our friend successfully taught her two kids to ride using this method.

Kai took just a few steps with the bike and immediately got frustrated. He had a hard time moving along.

From what I could tell, his balance was so bad that even with his feet on the ground, his bike leaned to one side and made movement and steering difficult.

I told him to sit straight. He kept leaning to the left.

I advised him to take slow steps. He was angry and took quick steps. That only made it more difficult for him.

I tried to encourage him to keep stepping. He kept stopping.

I pointed out a landmark, just a short distance away, and told him we would turn around to go home from that point. He threw down his bike and said he wanted to quit now.

I was surprised at how hard this seemingly simple action was for him. And I was frustrated with his frustration.

I told him sternly that he would not quit. I acknowledged that this was difficult for him but tried to explain the importance of not giving up. I don’t know how much of that he understood.

When he threw down his helmet and started to walk home, I resorted to making a threat. I told him that I would take away his penny collection if he did not keep trying.

And that really angered him. He spit at me. When his spit didn’t reach me, he walked up right next to me and spit again. I told him that he shouldn’t spit at people and pushed him away.

When Kai is mad, he tells me that I am not his dad anymore. And that is what he shouted to me then. He said that Mom would find him a new one. I told him that it didn’t work that way; I was his dad and he was stuck with me.

Though he was mad, he got back on the bike and stepped the short distance that I originally wanted him to. I gave him props for completing the activity, though I wasn’t feeling too happy about the whole thing.

Once we got home, we both calmed down and had a nice evening.

But I wanted to reflect with him on how things had gone that afternoon.

At bedtime, after I turned out the lights and tucked him in, I told him that I was hurt that he spit at me and that he said that he didn’t want me to be his dad anymore. He started to cry.

I told him that his mom and I do everything we do because we love him and want him to grow up to have a good life. I said that I know that I can be tough on him and that I understood how hard it was for him to ride the bike, but that I didn’t want him to quit because I want him to develop good habits so that he can grow up to be a happy young man.

By this time, he was really crying hard. He told me that he was sorry, and he seemed really sincere about it. It was one of the few times I had seen true sadness and regret from him.

I told him how much I loved him, and we said good night.

Shortly after I left his room, he came out and said that he couldn’t go to sleep until he wrote me a letter telling me how sorry he was. I told him that he didn’t need to write me a letter, but that I would take a big hug.

We hugged a good long time. I told him how happy and proud I am to have him as my son. We both said, “I love you” several times.

The psychologist who works with Kai has told us that he is afraid to have sad emotions and often gets angry or acts silly to hide his true feelings. On this night, he faced his emotions. And because of that, we connected.

I never will forget that feeling.

Now I just need to find a way to help him with his balance on the bike.

Easy As Riding A Bicycle?

This week’s column in the Patch takes a look at our long history of trying to teach Kai to ride a bicycle. Read all about it here.

The Price of Peace and Quiet

I recently mentioned that Kai has been making loud, very annoying snorting sounds lately, the frequency and severity of which had increased when we put him on ADHD medication. It also seemed worse when he was feeling stress, leading me to doubt that it was purely a physical problem.

When we took him off the drug last week, the frequency of the snorting decreased, though it did not disappear entirely.

At its worst, his school contacted us, wondering if it was a physical problem, so we made an appointment to have him checked by an Ear/Nose/Throat (ENT) specialist.

We couldn’t get an appointment right away but we finally saw the ENT this past Friday. He said that there was no physical reason for Kai to be making the snorting sound. In his opinion, it was a voluntary act. He recommended that we see a behavioral specialist to work with him not to do that anymore.

That evening, Kai found a penny and added it to his piggy bank. He then took out all the coins from the piggy to see how many he had accumulated. Before long, he was trying to organize them, seeing what year each was from.

That gave my wife an idea. Kai could earn a penny every time he went ten minutes without snorting or loudly clearing his throat. (A soft clearing was acceptable). Kai was eager to begin.

At first, he forgot and snorted and then we would remind him of his opportunity to earn pennies. And by the end of the evening, he had added a few to his collection.

The next day, he snorted a few times early in the morning, but then went the whole rest of the day without doing so again. He was really motivated.

With Mom’s help, he created a timeline chart and taped all of his pennies to it, with the oldest penny to the left and the pennies dated 2011 to the right. He even allowed room on his chart to go all the way up to the year 2060. I laugh at the thought of him still collecting pennies over the next fifty years.

On Sunday, he again went most of the day without snorting. He had accumulated dozens of pennies over the weekend.

All these months, asking him to stop snorting had no effect. Yelling at him to stop snorting had minimal effect. But the chance to earn something that he desires has had a great effect.

Who says that a penny isn’t worth anything these days? For us, it bought us peace and quiet. Now that is a bargain.

S-O-S Best of the Best, Edition 7: Sleep Issues & Bedtime and Special Needs Kids

This month’s S-O-S Best of the Best (BoB) takes a look at sleep issues that affect so many children with special needs. Twenty bloggers share their experiences.

My own post on the topic is from when Kai was waking up in the middle of the night on a regular basis. Since then, we’ve had some good streaks, too. Lately, he has been sleeping through the night about as often as he doesn’t. But he is much more tired in the morning, even when he sleeps through the night, which is a change from before when he was full of energy all day even when he did not sleep much at night.

I don’t know if Kai will ever consistently sleep well. But we’ll keep trying to find ways that might help.

And so I’ll take a look at what the other bloggers have done. And you can too, right here.

Bad Morning, Good Day

My son has had a series of awful days at school this summer, perhaps due in part to the medication he was taking. He’s had major incidents almost every day, and sometimes more than one.

His latest bad day was this past Tuesday. And this one cannot be blamed on the medication.

This week, our area again suffered wide-spread power outages though thankfully our house was mostly spared this time.

However, that did not mean that we did not have any consequences. Many major intersections had inoperative traffic lights that made driving a nightmare. And though Kai had been doing much better in the car lately, the backups from the non-working lights was too much for him to bear.

On Tuesday morning, as his cab took far longer than usual to get to school, he got anxious and then verbally bullied the cab driver. When they finally arrived at school, he struck her. Furthermore, his frustrations apparently carried over as he later flipped over his desk in the classroom.

Coming after many other incidents at school this summer, dealing with one more was extremely frustrating. It is challenging not to be negative about everything we are doing, and to doubt if we are making the right choices for our son.

Yesterday morning, as I was haranguing him to eat his breakfast and get on the trampoline before the cab came, Kai had a huge meltdown, one of the worst we’ve seen at home in a while.

We could not put him on the cab in that state. I was frustrated and flustered.

My wife stepped in and spoke to Kai in soothing tones. She gave him deep pressure hugs and squeezes. Eventually he calmed down. He said that he was “almost ready” to go to school. And then a few minutes later he got into the car and Mom drove him there.

He ended up having the best day of school in recent weeks. And when I worked with him on some computer learning programs later in the day, he did a fantastic job, staying calm and focused through the difficult parts.

I’m not sure what happened there. But it was a good day following a bad morning, which followed a whole lot of bad days.

Hopefully that is a sign of better days to come.

How Many Google Doodles Have There Been?

My son came home from his after-school activities yesterday and went straight onto the computer to surf the Internet. When I didn’t hear anything from him for several minutes, I thought I better check to see what he was up to. After all, I remembered what unsupervised Internet usage could lead to.

This time, Kai had found a site that showed all of the Google Doodles, the Google logos that commemorate holidays and events around the world.

Some of the logos have been shown worldwide, while others are particular to a specific country. I see them from time to time, but had no idea there were so many of them. How many were there, you ask?

Well, I can now tell you since Kai wasn’t just looking at the logos, he was counting them.

As of yesterday, Google had created 1,094 Doodles.

And now you know.

My Part Penguin Son

Today’s Patch article takes a closer look at Kai’s love of water. Hot or cold, it doesn’t matter. My son loves going to the beach. Click here for the full story.

Rocks at the Beach

It was hot and humid this weekend. Beach weather!

My son has always enjoyed going to the beach, but in past years he only waded slightly into the shallow water and splashed a bit, mostly preferring to play in the sand. It wasn’t all that long ago that he screamed in protest every week when it was time to go to his swim lessons. So, we are amazed at how comfortable he now is in the water.

Although he doesn’t yet have good arm strokes, Kai loves putting his head in the water and diving under.

Our local beach is convenient, but there are a lot of small rocks near the shore that make it a bit painful to walk. It didn’t bother Kai, as he spent most of his time diving down and bringing up rocks.

He amassed a large collection, going back down, bringing up a handful of rocks, and then carrying them back to shore. After awhile, he smartened up and had Dad lug them back to our beach blanket.

After awhile, I realized that he was going to want to bring them all home. I didn’t want to carry all of them back to the car, let alone have them take up space at home. So, I told him that the rocks have to stay on the beach. He got mad, as he had been looking forward to keeping his collection. I reconsidered, and told him that he could pick out ten to bring home.

At National Parks, you are not supposed to take anything, but I don’t know what the official policy is for this municipal beach. I was a bit embarrassed, though, to be seen bagging up the rocks and carrying them out. My wife, though, thought it was cute that Kai swam so well and worked so hard and wanted to bring them home. After thinking about it more, I agree.

I relented and let him pick out a lot more than ten. We ended up filling about three bags. I asked him who would carry these heavy things and he insisted that he would. And he tried. Though seeing him struggle, my wife and I took his share and let him carry the lighter sand toys.

Hopefully we didn’t break any city rules by taking the rocks. Heck, I think maybe they should pay us for cleaning up the beach a bit. But, regardless, I will treasure the little rock garden we’ve started in our backyard as a small symbol of the progress Kai has made with overcoming his fear of the water.

Our Initial Experiences With Medication

About two months ago, I wrote that we were considering anti-anxiety and ADHD medication for our son. A couple weeks after that, we decided to go ahead and give them a try.

The early results are not encouraging.

Our son’s psychiatrist started out by prescribing a very low dose of an anti-anxiety drug, then increased it a bit a couple of weeks later. He added on an ADHD drug shortly after that.

We thought the greatest change in behavior would be noticed at school or during his therapies, so we told Kai’s teachers and therapists about the medication and asked them to closely monitor his behavior to see if they saw any changes.

During the first few weeks, when Kai was only on a low dose of the anti-anxiety drug, they said that he seemed more relaxed. He endured some stressful situations, such as the start of summer school, fairly well. But the truth of the matter is that the initial dosage was very low and the medicine probably hadn’t really taken affect at that point. It is difficult to say with any degree of certainty that the medicine played a part in his early summer school success.

Since then, we’ve increased the dosage on the anti-anxiety drug and added the ADHD medication. We have noticed more changes in his behavior. Unfortunately, none of them have been good.

Kai has been tired in the mornings, and his teacher reports that he seems lethargic. Instead of being more focused on schoolwork, he is having a harder time staying on task. Worse yet, he seems more irritable and quick to anger. He has had a major incident at school every day over the past couple of weeks. Many involved trying to hurt the staff working with him, or trying to hurt himself.

At home, he has at times been less respectful, as if the release of his anxiety freed him up to be more defiant.

Perhaps the most annoying change is an increase in a loud snorting sound that Kai makes. He’s made this sound before at times, and it may have started when he had a cold or allergy. But it seems clear to me that these days the problem is not a physical one.

Kai could be sitting at the computer, contentedly looking at his favorite YouTube videos, with nary a peep out of him. But then when we ask him to read, he suddenly cannot go more than 10 seconds without this horrendous pig-like noise. It appears to me that anxiety brings this on. Is it a bad habit? Is it a tic? Is it an OCD? Whatever it is, it is driving my wife crazy, and I’m not exactly happy hearing it either.

With these developments, we called Kai’s psychiatrist to update him on how things are going. He is having us stop the medication, at least for the time being. We will see if the snorting, aggressive behavior, and tiredness eases with the stopping of the medicines. If it does, that will be an indication that the medication was the cause and the doctor will need to adjust.

This is the doctor who scoffed at the biomedical treatments that we have done. If we had these results with the biomedical medicines, I would not have been surprised to hear the doctor give us an “I told you so.” But we are finding out that conventional medicine is not an exact science either.

It is too early to give up. We will give the doctor a chance to analyze and adjust. And hopefully we will see better results later this summer and into the fall.

But one thing is for sure. We are finding out what we really already knew. When it comes to autism, there is no sure thing. There is no easy answer.

A New Hobby

Kai’s grandfather has a passion for collecting. He loves going to antique fairs to look for things that piqué his interest. His collection includes a variety of eclectic items ranging from old boxes of laundry detergent to postcards from bygone days. Perhaps more than anything, he has a lot of old tin containers of everything from typewriter ribbons to peanut butter. (Peanut butter used to come in tin containers? Who knew?)

On our visit this past weekend, Papa told Kai that he could choose three tins from his Fossil collection. These are tin containers that once held watches, sunglasses, or other Fossil products. Unlike most of Papa’s collection, these aren’t true antiques; rather, they are modern pieces that resemble old ones and are made for nostalgia than anything.

But for Kai, it was his introduction into his grandfather’s beloved hobby. He was getting his first tins.

I wondered how Kai would react. In past visits, he had seen tins that Papa put on display, but never seemed overly interested in them.

But the chance to pick out his own excited him. And he wanted more than three. I was embarrassed. I don’t want my son to be greedy. I want him to be appreciative for anything he receives and to not ask for more. I tried explaining that it was special for him to receive any tins from Papa and that he should be thankful for what he had.

But he kept persisting and Papa agreed to let him have five tins. Make that six. No, ten.

And so Kai enjoyed picking out his ten tins. And the rest of our visit, he took notice of the tins Papa had displayed around the house, something he hadn’t done much of before.

When we got home, Kai wanted my help in setting up a display of the tins in his room.

It looks like Papa has started Kai down the path of tin collecting. Knowing Kai’s obsessive personality, there is no telling where this will lead. Maybe he will memorize the dates that each tin came out. Perhaps he will create a catalog that shows the value of each one. I’m pretty sure he will want more.

I smile at the thought that one day they will go to an antique fair together, each picking out their favorite tins.

Tins: the bond between a grandfather and his grandson. Who would have thunk it?

Las Palmas Offers More Than A Good Meal

This week’s column in the Patch is about our experiences eating in restaurants with Kai. Click here for the full story.

Fourth of July Weekend

We made it over to South Haven, Michigan for the holiday weekend.

Kai loves going to the beach, and the one we go to in South Haven is our favorite within a few hours drive of our home.

Kai is increasingly showing how comfortable he is in the water.

Nothing like a little face-painting to celebrate Independence Day.

Kai loves going to the pick-your-own fruit farms. This weekend, we went cherry picking for the first time. And, as we've been seeing more of this year, he now likes climbing on ladders.

We enjoyed an evening on the beach where we watched the sky light up, first from the beautiful sunset, and then later with fireworks.

All that, plus some great fun with grandparents, made for a truly wonderful weekend.